Well... it's Monday and I'm back in Texas.... It's good to be home, but I wish it was cooler weather.
I had a BLAST at ECTRIMS!!! I hope everyone enjoyed the information that I recorded and sent back to be published.
It was a unique experience, being behind the scenes of what goes on with all the DR's. One thing I did bring up to some of them is that the patients want more information not just more drugs... some responses I received were, to bring you're updated medication list and an in depth description of what's been going on since your previous visit.
I do this by going to patientslikeme.com You can basically have all of you medical info on one place and then print out a "Doctors Visit Sheet" when it's time for your DR appt. This gives your DR all the information he or she needs to treat you properly.
Another thing I learned, there is no WRONG question. Never feel that you can't ask a question about medical concerns, even if they are embarassing ... all of us with MS do have embarassing symptoms to deal with.
I loved hearing what all the DR's had to say and all the information given by Dr. Kantor. While I was at ECTRIMS, I walked around booth to booth picking up all information that I could on everything MS...
So, once my brain is functioning properly, I will try my hardest to get this information out there to everyone.
I wanted to thank EMD Serrono and Novartis for their Educational Grant, that made the coverage from MSWorld at ECTRIMS possible.
Remember, each one of us living with MS is unique... and that's why MSWorld is a "fit" for us. There is no other organization that is all patients supporting one another.
Once my jet lag wears off, I will be doing my video blog to give a more in depth "overview", but I didn't think it would be the best thing to do right now, with my brain not fully working! haha
And don't forget to keep checking back to the ECTRIMS coverage, because there are some more videos that will be posted... I recorded so much, that we are trying to go through ALL of it, and get it ALL posted!
Take Care everyone!
xoxoxoxo
Ashley
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