Friday, December 9, 2011

Interesting things at ECTRIMS 2011

My photoshop of ECTRIMS.
Got Red?
So, while I was at ECTRIMS I have to tell you that everything was RED! The carpet the tables even the chairs... I have Optic Neuritis, so I have an issue with RED. Needless to say, I was tripping.... a lot. I did want to keep everyone up to date on some new and exciting tools that are out there that I learned about at ECTRIMS.

I visited the Genzyme booth where they were showing their resourceful tool called the MS Atrium. It's an exciting tool that is very interactive & helpful to anyone who wants to know more about MS. One thing I have to share about viewing the MS Atrium, is that they asked me for MY opinion. Let me tell you, I was happy to give it to them.

I've never had a MS pharma company ask me for my opinion on something so this meant so much. It made me feel that our voice does matter when it comes to tools and resources and even the pharma drugs. A lot of the people that I saw in each booth at ECTRIMS didn't know I had MS... so they were speaking to me in a "teaching" persona... when I already knew a lot of what they were saying.

I can't stress the importance of being knowledgable about all things MS, especially if you are diagnosed with MS. It's up to us to change the course of Multiple Sclerosis in the long run. By making our voices heard... it can make a difference, even if it's a small one. I did want everyone to check out the MS Atrium though, www.msatrium.com/

Let me know what you think about it. It's like a virtual world of all things MS. Also, what was your favorite thing covered at ECTRIMS? I've been responding to comments that I've seen in the Conference Center... but i'de like to hear more feedback from everyone. I have still been getting contacted about ECTRIMS from different companies... and I want to provide as much feedback as possible. Remember, every voice counts.

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